CUTIS LAXA INTERNATIONALE

 

    We are starting a great story..............................All together.

 

 

 

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Cutis Laxa worldwide

 

All human beings, wherever they are born, in whichever country, whichever continent, are submitted to the same genetic laws. Even if our personal genetic code is unique, the Human Genome Map is universal.

When you are concerned by a rare genetic disease, staying  inside your native borders may be synonymous to not being taken in charge of by scientific research, and living with great loneliness. For an example read the Story of our Association

Setting up contacts with sufferers and their families worldwide allowed isolation and loneliness to be broken for each one of us. Most of all, doctors and scientists have understood a research was possible because there were enough cases.

All continents are represented among our members : Europe, America, Oceania , Asia, and Africa. Today we know of 226 sufferers ( Association's census)

 

To see details of each country, in each continent, click on the links below :

 

    NORTH AMERICA       SOUTH AMERICA    EUROPE     AFRICA    

 

MIDDLE-EAST     ASIA       OCEANIA

 

The different available documents concerning Cutis Laxa talk about more or less 100 cases, described in the medical literature, worldwide. One should also note that there might be some cases which are not diagnosed, or only recently so. Today we know there are lots more than 100 sufferers. Many of them are still alone.

Must they go on staying alone ?

If you happen to know about someone with Cutis Laxa, during a travel, a meeting, please give our name and address. Itís important for this person, itís important for us, itís important for research, itís important for you.

 

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For any question about this site or our association, send a mail to MCJLBoiteux@aol.com
Version 2.06 - Last update : 31st July 2013