CUTIS LAXA INTERNATIONALE
We are starting a great story..............................All together.
Welcome Legal Information Homepage What is it ? Research Worldwide Health Professionals The Association
Newsletters Aims and Projects Join Us Stories Laws and Social Rights The Diary Associations and Links
Patronages Press Release Photos Our Actions
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You are concerned by Cutis Laxa (patient, patient's parents, doctor, researcher)
ask to join our FACEBOOK Group
Your request must be accepted by the administrators Susan Meek Dickison Nuner and/or Marie-Claude Boiteux .
To ensure that you are eligible to this private group, they send you a message and a friend request to their own friends' group.
If you do not accept the friend request, the message will be put in the message box "Other"
located on top of your private messages (Inbox Other More)
You are looking for the name and address of a doctor who knows Cutis Laxa and could answer your questions
go to the List of Doctors
You can help us collect used mobile phones, inketjet and laser cartridges.
For more details see the page OUR ACTIONS
4th Information Day on Cutis Laxa - Lyon (France) - 15th to 17th SEPTEMBER 2011
people visited these pages since we opened the site on 24th October 2002
Last updates !
July 2014 :Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, Cutis Laxa Research, adding CLI-News N°22, Annual Meeting 2014, new Photos and Press Release
February 2014 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°21
July 2013 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°20, Annual Meetings 2012 and 2013 and Press Release
January 2013 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°19, new Photos and Press Release
April 2012 : Updating the page Legal Information
February 2012 : All pages updated, new pages : CLI-News N°17 and N°18, Annual Meeting 17th September 2011, Projects, Photos, Scientific talks 17.09.11, Diary, Presse Release
NOTE : COPYING, REPRODUCING AND/OR ANY OTHER USE OF THE PHOTOS and/or DIAGRAMS OF THIS SITE IS STRICTLY FORBIDDEN
We specially thank ORPHANET (www.orpha.net) who hosts our website for free and is member of the charteHONcode.
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All material found at this site is for educational and informative purposes only. It is not intended to substitute medical or professional services nor replace the relationship that exists between patients, their physicians and other health care providers. No action, treatment, independent entities or persons are endorsed and all information is provided without warranty. Any questions should be referred to your physicians and in particular, any changes in treatment or care should be made in conjunction with your medical team.
The update is mentionned at the end of each page.
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