We are starting a great story..............................All together.


 Cutis Laxa

      Welcome         Legal Information         Homepage      What is it ?       Research         Worldwide        Health Professionals       The Association      

Newsletters    Aims and Projects    Join Us     Stories    Laws and Social Rights    The Diary    Associations and Links     

 Patronages       Press Release    Photos    Our Actions

FRANCAIS                DEUTSCH               ESPAŅOL          Next

You are concerned by Cutis Laxa (patient, patient's parents, doctor, researcher)

ask to join our  FACEBOOK Group

Your request must be accepted by the administrators Susan Meek Dickison Nuner and/or Marie-Claude Boiteux .

To ensure that you are eligible to this private group, they send you a message and a friend request to their own friends' group.

If you do not accept the friend request, the message will be put in the message box "Other"

located on top of your private messages  (Inbox    Other    More)


You are looking for the name and address of a doctor who knows Cutis Laxa and could answer your questions

go to the List of Doctors

You can help us collect used mobile phones, inketjet and laser cartridges.

For more details see the page OUR ACTIONS



4th Information Day on Cutis Laxa - Lyon (France) - 15th to 17th SEPTEMBER 2011



people visited these pages since we opened the site on 24th October 2002




Last updates !


February 2014 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°21

July 2013 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°20, Annual Meetings 2012 and 2013 and Press Release

January 2013 : Updating the number of sufferers, updating the maps, Cutis Laxa Worldwide, adding CLI-News N°19, new Photos and Press Release

April 2012 : Updating the page  Legal Information

February 2012 : All pages updated, new pages : CLI-News N°17 and N°18, Annual Meeting 17th September 2011, Projects, Photos, Scientific talks 17.09.11, Diary,  Presse Release

Septembre 2010 : Updating all pages and adding new ones : Cli News N°16, Annual report 6.05.2010, Projects 2010






We specially thank ORPHANET ( who hosts our website for free and is member of the charteHONcode



HONcode certification seal. We comply with the HONcode standard for trustworthy health information: verify here.
Legal Disclaimer

All material found at this site is for educational and informative purposes only. It is not intended to substitute medical or professional services nor replace the relationship that exists between patients, their physicians and other health care providers. No action, treatment, independent entities or persons are endorsed and all information is provided without warranty. Any questions should be referred to your physicians and in particular, any changes in treatment or care should be made in conjunction with your medical team.


The update is mentionned at the end of each page.

Optimised for a 800x600 display on a 17 inches' screen



For any question about this site or our association, send a mail to
Version 2.06 - Last update : 24th February 2014