In France, the CERVCO is the reference center for CADASIL. It was created in 2007 within the national program for rare diseases. Its missions consist in defining rules for the diagnostic, follow-up, treatment of diseases belonging to its scope, as well as coordinating Research programs, medical networks, nationwide information of medical professionals, patients and families.
►L'Alliance maladies rares
The Alliance maladies rares is a federation grouping 193 associations, representing 2000 rare diseases.
Note: Cadasil France is affiliated to the Alliance maladies rares.
►Orphanet
Orphanet is the european portal for rare diseases.
Note: Cadasil France website is hosted on Orphanet servers, with sponsorship of la Fondation Groupama pour la Santé.
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Eurordis
www.eurordis.org
An european Federation grouping more than 380 associations of patients and national alliances, being the voice of the 30 millions patients affected by the rare diseases throughout Europe.
►Le GIS - Institut des maladies rares
www.institutmaladiesrares.net
GIS institute for rares diseases is a group of scientific ressources and actors, the aim of which is the coordination and impulse for research on the rare diseases. ♦
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